Jayne Mattingly is an author, artist, and disability advocate who coined the term “Body Grief” after a sudden vision loss at 28 led to brain surgery and diagnoses including Ehlers-Danlos Syndrome. Through vibrant paintings, storytelling, and her Substack This Is Body Grief, she helps people with chronic illness and disability honor their bodies and grief while finding joy, play, and community along the way.
Photo Credit: Erica Elan Ciganek